Oscar was a happy and healthy baby. We felt so blessed to have him in our life and everything was just perfect for our wee family. Around 9 months old we noticed small patches of typical eczema on him and we were prescribed hydrocortisone steroid cream to help. This magically erased any signs of eczema and this routine went on for a few months. At 18 months old Oscar had a massive flare up from head to toe and things got worse from here. He was continually infected due to scratching his wee body to bits. We were continually prescribed stronger and stronger steroid creams and trusted what we were being given would be fine to use. Why would we think otherwise when its dished out to so many people, so many children.
Fast forward 4 years and we are still in the same situation! We now believe Oscar has Red Skin Syndrome. It appears our wee man is addicted to steroid cream and can't function without them. We got a small taste of this last week after not using creams for three weeks. Oscar barely moved from the couch, he could hardly walk as his body looked like it was burnt, he was in terrible pain and didn't eat. Two days of steroid cream and he magically slept all night(the first time since February!) and his body looked clear and beautiful again...3 days later he is red and itchy again. We are stuck in a trap, a very nasty, itchy,
painful one. We need to get Oscar well again. It breaks our heart seeing him so uncomfortable and itchy every single day-every single night. Sadly he is going to have to go through more pain to get better again.
Our family motto is 'Never Give Up" - We will be well and truly putting this to the test over the next while!
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