A SMALL GLIMMER

Last week was a crazy week with Oscar having a high temperature bug for 5 days. He ended up having the whole week off school! We were supposed to be starting the immune suppressants but the pharmacist said we need to wait until Oscar is over the bug. Then something quite strange happened. Over the weekend we noticed Oscars skin getting clearer by the day. We have been staring at him..and touching him in disbelief!! We used steroid creams three times last week...this isn't usually enough to help him at all. We are wondering if all the sleep he has had has helped his skin to heal..how could it not! The amount of sleep he had last night equates to his usual amount of three nights worth! Yesterday he told me he didn't feel itchy and wants to now wear clothes to bed. Honestly- his skin had completely cleared all over! The last time he looked this clear was eight months ago for a few days.
Usually after day three of no steroids his skin starts to change..we have made it to day five. However this morning I can see his skin changing for the worst. His back is starting to get rashy and spotty and his face is looking slightly red tinged. He also said this morning "I feel itchy again". I wasn't naive in thinking Oscar was magically cured but I can't begin to describe how lovely, and emotional it was to see him have a brief moment of being healthy..and happy! There were no troubles getting him ready for school yesterday and when he got home from school he wanted to go for a bike ride, do his homework, play on the trampoline..then go for another bike ride after dinner with his Dad! Oscar even wore clothes all afternoon! Usually he gets home from school, takes his clothes off and sits on the couch in a daze watching t.v. This has been a glimmer of what life will be like for Oscar when he is no longer itchy, bring it on!!
We also have a new addition to our family. Woof the dog! Little Woof has certainly put a smile on all our faces. Oscar was scared we would send him away if he reacted to Woof but we are happy to report this hasn't happened.
Now we need to make a decision as to what day to start methotrexate. I'm in two minds..Keep waiting to see what the next week brings, although I'm not sure what I'm really waiting for as Oscar's skin
will deteriorate from here on in. Perhaps we start the drugs tonight? ..... So undecided right now.