A FLARE NEARLY OVER

My gosh, what a week for wee Harry. This has been his second week of full flare and he has been so miserable. Itching like mad, oozing, not sleeping, he's had diarrhoea and just wants to be continually held, cuddled up on the couch with his blanket or in the bath so that he can scratch! Yesterday he had a sleep in the morning then after an hour he said he was tired and put himself back to bed. At 6.30 tonight he climbed into his wee bed and said he wanted to sleep. What two year old does that?! I thought this flare would never end! We have also seriously been considering immune suppressants however this morning Harry woke and started talking instead of crying. I knew straight away he was feeling better. He is soo dry and scaly. It actually looks like he has been sunburnt and the skin is peeling. We can pull flakes off of him!.. And this according to the specialists is 'just eczema.'
 The greatest news though is I can see glimmers of white underneath all the dryness. This is the first time I have really seen white on Harry's skin in months. I'm looking forward to seeing how he goes over the next few days. It's been heartbreaking seeing him sick this week. I have been so scared, anticipating all kinds of scary things happening to him as I have never seen him this way. The initial first six weeks were hard too but this is his first big flare since then really as he seemed to be not getting any worse- or any better for quite some time. So this has knocked him around hugely. I'm so proud of Harry for getting through this. I know he is able to get through the next flare and hopefully it won't be as severe. Officially one flare down! Harry has also successfully taken supplements this week without being sick. I'm assuming he's too exhausted to protest so hasn't really put up much of a fight and in turn has figured out they don't taste as bad as he initially perceived! This is great that we can get some goodness into his wee body to help support it through TSW.

Oscar is still itchy in the usual parts however he is drying up and healing, it's just a very slow process. We believe the moisturisers feed his itchy bits. We have done a couple of test runs on our new theory and sure enough the next day he is red and itchy and has scratched the itchy bits more throughout the night and as soon as we stop he starts to dry up again. So fingers crossed he continues to heal. School starts back on Monday. The challenge starts again to try and get Oscar to school on time! For those that may have not read previous posts, Oscar usually sleeps in from anywhere between 8-10 depending on how his sleep during the night. I have a feeling it will take awhile to adjust back into the school routine.
Fingers crossed we are able to have some fun times over the next couple of weeks with the boys, we would love to see Harry tearing around with a smile on his face again!

Mr 2 looking like a wee wrinkly old man

V

Oscar's itchy armpit!