I suspected corn as the wheat free breads and flour for baking is maize based. Oscar's had a slight cold this week so this puts us a step back however I'm hoping the next couple of weeks bring even more healing for him. Oscar even slept on Saturday night for 14 hours! He woke a few times but very briefly. Quite possibly this could have been the best sleep Oscar's ever had!
Harry is still happy enough but he's attacked his feet and legs this week. Lots of broken bright red oozing smelly skin. Even after a bath he smells! Harry's wee face is very dry too but I have to keep reminding myself how far he's come. He's back wearing an all in one suit with his sleeves. We still bandage his hands at night too. If only we could do this 24/7! All Harry's clothes are stained yellowish from the ooze or red from blood. I can't wait to buy him lots of fresh new clothes but there is just no point at the moment as anything I buy will get ruined after a few wears. One day he won't smell and will be able to wear nice clothes! He really looks like a wee mismatched wee guy with his suits, sleeves and gumboots!
Harry has had a couple of nights where he has slept four hours before waking. This is pretty monumental for us so hopefully we get more of these nights as usually it's four hours total sleep for a night. We won't know ourselves when our wee men start sleeping all night!
A very sore leg! |
Oscar's neck is finally healing |
Have just stumbled upon your site after coming to bed with itchy swollen skin which is excema, just something else that has triggered it off. Unlike your boys I am a 45year old mother of 3 but I have battled this since the age of one. I am currently undegoing phototherapy treatment and have given up on the steriods. Harry's pictures reminded me not to feel sorry for myself when he is going through this and only a child. You are doing an amazing job as a mum and I wish you and our family lots of love and support
ReplyDeleteThank you so much for your lovely comment. Wishing you a quick recovery. If you need a helping hand, Lisa from Rough Patch would be only too happy to help. Keep strong x
ReplyDeleteThank you so much for your lovely comment. Wishing you a quick recovery. If you need a helping hand, Lisa from Rough Patch would be only too happy to help. Keep strong x
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