A SMALL REACTION

A couple of weekends ago we went for a play at the park. There was a grass hill there and Charlie and Oscar started rolling down it. As soon as I saw Oscar on the grass I panicked as this would usually result in a trip to the doctors for prednisone as Oscar's reaction would be a bright red burning rash over his entire body for days.
Oscar had shorts and a t shirt on too, I let him play on the grass for a few minutes before asking him to play at the park.
There was no immediate rash thankfully but sure enough half an hour later his arms and legs came out in a rash. We quickly went home and Oscar had antihistamines and a shower. He also had welts on his stomach. A couple of quiet hours and he came right. Reaction over! What a massive relief. This is Oscar's first allergic reaction since coming off the immunesuppressants and it was a totally 'normal' and managable one.
We are drying clothes inside and in the dryer at the moment as there is so much pollen around. It's not worth the risk as this week Oscar's skin is the itchiest it's been in months. Harry's skin is too. This could be because Harry decided to help himself to peanut butter..by the spoonful!
I am so grateful our days of debilitating allergy reactions are over.

Charlie is also rundown at the moment. His mouth is full of wee ulcers and he had a temperature over the weekend and is very tired this week. One more day and then school holidays..wahoo.

Oscar's reaction to grass

Oscar's legs this week

Harry's arm

Harry's feet are still itchy.  No where near as bad as they used to be! 

NO ECZEMA

I never thought I would have a post titled 'No Eczmea'. Our life has revolved around Eczema for so many years that it's our normality. Oscar is nearly two weeks eczema free, not one tiny itchy bit anywhere on his body. He did have a bath a few nights ago and that resulted in itchy legs for the evening but I think that may have been from the heat.
Oscar has moisturiser on every night before bed and as I apply it I can't believe how amazing his skin is.  I'm blown away actually as we have never seen his skin so clear before.
The pessimistic part of me is waiting for a flare up!
I wonder how long he will continue to present with no eczmea or is this the end of this horrible journey for Oscar?

Harry's arm is looking much better now with using Aveeno and Manuka Paint. Years ago we would have just grabbed the steriod ceeam out of the cupboard for a quick fix. We now know that we have to ride out flare ups and unfortunately the process isn't as quick as steriods but it's by far the best option!

Harry had a rough round of blood tests this week. When we arrived at the doctors Harry hid under a table. Initially I thought he was playing until I realised what he was doing! He was so upset and stressed and it took three nurses and myself to try and calm him down but they couldn't find a vein. After an unsuccessful attempt we had a break and round two was much better. An hour later it was finally over with. Of all the blood tests the boys have had this was the worst by far!

*I was meant to post this two weeks ago!
Oscar had two weeks of being eczmea free.
He's itchy again in the usual places but I'm not complaining, two weeks of not being itchy is one massive milestone and the longest period in Oscar's entire life of being eczema free.
Fingers crossed for another round of this soon as tonight Oscar's tucked in next to me itching like crazy. Nights like this are a sharp reminder of what things were like for us every night.  
Right time to do some patting!