Friday, January 6, 2017

HAPPY NEW YEAR

Another year ticks over. We are now six whole years on this journey of trying to get our children itchy free and healthy. Will 2017 be our year of achieving this?

We had a lovely Christmas catching up with family and friends. The boys got kayaks for Christmas so we have had a few days playing at the lake, even Harry has had a wee play in them.
We got a heat pump installed a couple of months ago to keep the bedrooms cool in Summer. Last year it was 35 degrees inside, not ideal with itchy children. Yesterday was particularly hot so it was just wonderful having the heat pump on keeping us cool. Although it didn't help Harry sleep any better. He's a wee mess at the moment. We've just started him on Skin Friend and his immune suppressants have been slightly increased so I eagerly wait to see if it helps. Harry's also taken to caring for his skin. I checked on him at bedtime the other night and he was on the floor with tissues in his hand dabbing the blood from his legs. Andrew got Harry's bandages ready a few days ago and Andrew went to get the scissors and Harry had started bandaging his own leg!


My news resolution is to work harder than ever to get the boys well. That means being super strict with foods, keeping on top of supplements, caring for the boys skin. Actually I do most of this anyways but I want to follow the eczema diet as much as we possibly can. 
Lastnight was a good start. All three ate leeks! I sauteed the leeks and added maple syrup and salt and it slightly caramelises the leeks and makes them sweet and they really are very delicious.

Oscar has impetigo and a croup cough and is constipated again this week. How can he be run down when it's the school holidays? He slept nearly the whole day away as his wee body fights to get better. We have reduced Oscar's immnos by half a pill this week. So close to being drug and steroid free! 
 Harry has yet another cold too. Although it just seems to be a forever cold with a few days in between of being better. Charlies healthy thankfully! He told us today he is different from Oscar and Harry becasue he's not itchy. 
We also celebrated Charlie's 5th Birthday last week. We had a wonderful family day out to a Jarassic dinosaur safari and then had cake at the lake with family.

I thought having Andrew at home would be a huge impact on Harry's skin healing but he's just so quick at tearing apart. If anything we have probably reduced the amount of times he's done this as I've been sitting next to him in the car!
Hopefully Harry has a reprieve soon. Its been a long time since the last. Harry, Andrew and I could do with some sleep.


Practicing in the kayak on Christmas morning 
Dinosaur safari park adventures

Mr '5'

Harry bandaging himself!

Harry and Oscar chilling out with a well deserved lollipop watching the medical centre's I.Pad. No tears today from Oscar and blood tests done first try thankfully

Harry this time last year

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