Saturday, November 5, 2016

"THE BEST DAY EVER"

Who would have thought our family could enjoy another day out without itching, blood or screaming! We went to Queenstown last Sunday for Oscar's birthday and took the boys up the Skyline Gondola and surprised them by going on the luge. Initially Oscar panicked and got out crying as he wasn't sure what to do. Thankfully he persevered and tried again and figured out how to use the brakes! Oscar had an absolute ball and on the chair lift back up he said to Andrew "This is the best day ever". We all had a great day and it was very heart warming to see such a big smile on Oscar's face.  Unfortunately Harry and Charlie both went down hill as the day went on with temperatures and have been sick all week. No down time again for me this week! Charlie and Harry are coming right as of today except for a nasty cough. One thing I have noticed though is Harry's skin hasn't flared up like it usually does when he's sick. It's often a double whammy for Oscar and Harry when they get sick!

Harry's still scratching his legs and feet but nothing we can't handle!
Oscar's skin is beginning to clear again. I wonder if the skin friend is starting to kick in? Even his bottom which is usually covered in eczema is healing. I wait with bated breath! I'm certainty not naive enough to think this might be the break through we've been hoping for.  If he gets a few days reprieve before getting itchy again then we'll be happy.
I was given a beautiful bunch of flowers a couple of days ago from our lovely neighbour and friend thanking me for checking on their new gorgeous dog while they've been at work this week. It dawned on me this morning while admiring them that we haven't been able to have flowers in our house for so long.  It wasn't worth the risk to Oscar. We used to hang his clothes and sheets up inside so they didn't get pollen on them and windy days used to be an inside day for him,  I'm glad those days are over!

Reflecting on this time last year we were in the midst of caring for two sick children, barely sleeping, trying to still give Charlie some sense of normality, Surviving! We really have come so far. In fact I have cleared out Harry's draws to make way for proper clothes and have thrown out a pile of discoloured,  blood stained all in one suits, singlets, bandages and sleeves full of holes that I'm pretty confident we no longer require!

Reading the last few months' blog posts crack me up....'we're having a good week'; 'oh now we're not'; 'things are good again' ...  and what do you know, now they're not!

This is certainly a journey of ups and downs; What a ride!


Harry - One year ago (Oct 2015)!


Harry's poor wee back this time last year

Blood stained pile of clothes!


3 comments:

  1. OMG Look at the colour of Harrys skin, you forget how burnt it looked compared to now ... really hard to look at knowing how much pain he was in :((((
    And on a more positive note look at your beautiful smile, having fun. :))))))

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  2. The photos are getting harder to look at as I try to shut the pain away and focus on how much better the boys are now! love all the smiles on Oscar's face in the video x

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  3. Hi Cherie, have just come across your blog when doing my daily eczema google. Heart breaking to say the least, as a 33 yr old mum of 2 boys, I suffer from severe eczema just like your wee men! And am also in Wanaka. Am looking forward to following your journey xx

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