Thursday, October 6, 2016

MR 3!

Happy Birthday to our wee Harry. My baby is turning into a big boy!
Harry had a great day celebrating with friends and family and it's wonderful to see him so happy.
We have started toilet training this week with Harry and he's doing really well and has already mastered sitting on the big toilet and successfully did no.1's and 2's!
He's had a few more nights this week of waking up at ten so we have a two minute cuddle with him and he's then fallen asleep until six-seven a.m!
Oscar had his ultrasound last Monday and we are still waiting on the full report but it sounds like there is an abnormality with his kidneys. Whether or not this is the reason behind his stomach issues will be something that needs to be further investigated. Hopefully we hear more soon.
Last Sunday Oscar woke up and said he wanted to sleep back in his bed soon. Andrew asked him when and he said tonight! So queen bed out- fire engine back up! It's so lovely to see Oscar's room back into a child's room. We even suprised him with a new Starwars duvet cover that was supposed to be a Birthday Present.  I've had to stay with him until he falls asleep as he's been nervous about sleeping In bed on his own. Understandably after all this time. Night one Oscar came out to the lounge at seven in the morning with one very big smile on his face! The rest of the week he's lasted until various hours of the night before ending up in our bed.  So proud of Oscar for finally feeling ready to be back in his bed. It's very strange for Andrew and I to go to bed together and fall asleep next to each other.
Oscar has a sprinkling of spots all over his body that look like a reaction to something food related. He's had corn wraps this week so I'm assuming he's reacted to them?  I think what people forget with eczema and allergies is once there is a reaction to something the damage is done and it's unfortunately not something that dissappears within a few hours. For Oscar it's usually a week or two for his skin to recover. We have now  fully implemented the eczema diet by Karen Fischer so fingers crossed this will help. We need to have Oscar's Skin clear before coming off the immunos so it's a great driving force to stick at it even though it's very restrictive.
The boys have come such a long way over the last couple of months and more positive firsts this week. We are so proud of our wee men. I've been quite upset the last couple of weeks. I think now finally having time to reflect and realise what our wee men have been through and our family too. I have had to be strong for so long and now I don't need to with the boys getting better. It's really hard to explain as I feel like I should be overjoyed with excitement that things are  going well for us. If anything I'm relieved yet waiting for things to turn to crap again! We've been on this journey Soo long it's all we know. It breaks my heart to think of the pain Oscar and Harry have endured and that they've had so much of their chidhood taken away from them. These are things I need to work through in my head. The guilt also from applying all the steroids! I know I will be ok and work through it all . Andrew's been very supportive and has helped me to get out the door and do some exercise. I definitely feel better for it, just hard to get motivated!
A few days left of the school holidays so hopefully we can do some more fun things with the boys. We've managed skiing this week with Oscar and Charlie, it was a great day watching them learn. Unfortunately Charlie had to be rushed to the doctors in the afternoon with an ear infection! Going up the mountain set it off. He's doing fine now though thankfully. Yesterday we went to the bike bike. It's great being able to go on family adventures together finally. Hopefully we can squeeze in a couple more before holidays are over.





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